iSupport for rare dementia carers was adapted from the adult version in collaboration with carers and professionals supporting people living with non-memory led dementias.
It is relevant to carers of people living with primary progressive aphasia (PPA), posterior cortical atrophy (PCA) Lewy Body Dementia, Fronto-temporal dementia (FTD). Currently only available in English.
Introducing iSupport for Rare Dementias
Introduces iSupport for Rare Dementias, who it is for and how it has been adapted.
Part 1 - Introduction to Rare Dementias
This module provides an introduction to what rare dementias are, with a specific focus on posterior cortical atrophy (PCA), frontotemporal dementia (FTD), primary progressive aphasia (PPA) and Lewy body dementia (LBD). It discusses what happens to people with a rare dementia and what to do if you think that your family member or friend has a rare dementia.
Part 2 - Being a Carer
This module focuses on improving communication, shared decision-making, advice on employment, driving, and involving others in caring for the person living with a rare dementia.
Part 3 - Caring for Me
This module aims to reduce carer stress by making time for pleasant activities and thinking differently.
Part 4 - Providing Everyday Care
This module focuses on eating and drinking, including creating more pleasant mealtimes and preventing health problems, using the toilet and continence care, and personal care.
Part 5 - Dealing with Symptoms & Behaviour Changes
This module provides an introduction to common symptoms and changes in behaviour for people with a rare dementia that might be distressing and upsetting for both the person with dementia and you as the carer. These symptoms include depression and anxiety, apathy, anger, verbal or physical, changes in judgement and disinhibited behaviour, repetitive and obsessive behaviours, difficulty sleeping, delusions and hallucinations, visual changes, walking and movement problems, and memory loss